BRIAN'S LAW (MENTAL HEALTH LEGISLATIVE REFORM), 2000 / LOI BRIAN DE 2000 SUR LA RÉFORME LÉGISLATIVE CONCERNANT LA SANTÉ MENTALE

CANADIAN CIVIL LIBERTIES ASSOCIATION

NO FORCE COALITION

FAMILY MENTAL HEALTH ALLIANCE

RUTH MALLOY

ASSOCIATION OF GENERAL HOSPITAL PSYCHIATRIC SERVICES

ONTARIO COUNCIL OF ALTERNATIVE BUSINESSES

CANADIAN MENTAL HEALTH ASSOCIATION, METRO TORONTO BRANCH

CONTENTS

Wednesday 17 May 2000

Brian's Law (Mental Health Legislative Reform), 2000, Bill 68, Mrs Witmer / Loi Brian de 2000 sur la réforme législative concernant la santé mentale, projet de loi 68, Mme Witmer

Canadian Civil Liberties Association
Mr Alan Borovoy

No Force Coalition
Mr Erick Fabris

Family Mental Health Alliance
Ms Tunde Szathmary

Ms Ruth Malloy

Association of General Hospital Psychiatric Services
Ms June Hylands
Dr Ty Turner

Ontario Council of Alternative Businesses
Ms Diana Capponi

Canadian Mental Health Association, Metro Toronto branch
Mr Steve Lurie
Ms Eileen Dawe

STANDING COMMITTEE ON GENERAL GOVERNMENT

Chair / Président
Mr Steve Gilchrist (Scarborough East / -Est PC)

Vice-Chair / Vice-Présidente

Mrs Julia Munro (York North / -Nord PC)

Mr Toby Barrett (Norfolk PC)
Mrs Marie Bountrogianni (Hamilton Mountain L)
Mr Ted Chudleigh (Halton PC)
Mr Garfield Dunlop (Simcoe North / -Nord PC)
Mr Steve Gilchrist (Scarborough East / -Est PC)
Mr Dave Levac (Brant L)
Mr Rosario Marchese (Trinity-Spadina ND)
Mrs Julia Munro (York North / -Nord PC)

Substitutions / Membres remplaçants

Mr Brad Clark (Stoney Creek PC)
Ms Frances Lankin (Beaches-East York / -Est ND)
Mrs Lyn McLeod (Thunder Bay-Atikokan L)
Mr Richard Patten (Ottawa Centre / -Centre L)

Clerk pro tem/ Greffier par intérim

Mr Tom Prins

Staff /Personnel

Ms Lorraine Luski, research officer, Research and Information Services

The committee met at 1534 in committee room 1.

BRIAN'S LAW (MENTAL HEALTH LEGISLATIVE REFORM), 2000 / LOI BRIAN DE 2000 SUR LA RÉFORME LÉGISLATIVE CONCERNANT LA SANTÉ MENTALE

Consideration of Bill 68, An Act, in memory of Brian Smith, to amend the Mental Health Act and the Health Care Consent Act, 1996 / Projet de loi 68, Loi à la mémoire de Brian Smith modifiant la Loi sur la santé mentale et la Loi de 1996 sur le consentement aux soins de santé.

CANADIAN CIVIL LIBERTIES ASSOCIATION

The Chair (Mr Steve Gilchrist): Good afternoon, everyone. I call the committee to order for our continued hearings on Bill 68. Our first presentation this afternoon will be from the Canadian Civil Liberties Association, if Mr Borovoy could join us at the witness table, please. I see you have two associates, if they could come forward as well. Welcome to the committee. We have 30 minutes for your presentation, which you can divide as you see fit between either a presentation or a question-and-answer period.

Mr Richard Patten (Ottawa Centre): Do you have a document or paper, a handout?

Mr Alan Borovoy: No, we have to rely on our charisma.

For today, since we of course represent the Canadian Civil Liberties Association, I have Steve McCammon, our associate counsel, on my right, and a field representative, Andy McDonald-Romano, on my left-that is physically and not politically, necessarily.

Since we have not been able to review every aspect of this bill, our remarks today will focus on one area, and that is the widening of the powers to involuntarily commit. Principally, we're interested in the deletion of the word "imminent" and the addition of the words "substantial mental or physical deterioration."

When this bill was introduced, much was made of the fact that it's being called Brian's Law and that it is supposed to prevent repetitions of the kind of tragedy that occurred with respect to the newscaster Brian Smith. We find it difficult, however, to see a clear relationship between these amendments and the objective it was supposed to serve.

In the first place, the deletion of the word "imminent": "Imminent" was never used to restrict situations where bodily harm was the consequence that was anticipated. It was only used to describe committals that could be permitted in order to prevent a serious physical impairment occasioned by a person's lack of ability to look after himself. That's what it was used for, and not for serious bodily harm.

As far as "substantial mental or physical deterioration" is concerned, that of course is broad enough that by sheer happenstance it might catch some potentially dangerous people, but it is obviously not designed for that. It has nothing to do, particularly, with dangerousness. Indeed it's capable of applying to a wide variety of situations that have nothing to do with dangerousness.

On that basis, it would appear that at least one of the objectives of this bill, to protect tomorrow's Brian Smiths, as far as these amendments are concerned, is irrelevant.

Now let's take a look at the wisdom or appropriateness of putting in the criteria "substantial mental or physical deterioration." Try as I may and look as hard as I do, I'm unable to appreciate the distinction between "substantial physical deterioration" and "serious physical impairment." I don't know where one leaves off and the other begins. Indeed, to me they look like rather synonymous terms.

As far as substantial mental deterioration is concerned, this might be able to enable numbers of Ontario families to ensure that their afflicted loved ones get the treatment they so badly want them to get. The difficulty is that it is so wide that it may be capable of applying to numbers of other situations as well.

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Then we look at, what are the definitions? What can help us? What does "substantial mental deterioration" mean? No definition for it. There is a definition for "mental disorder," but not a very helpful one. It's a disease or disorder of the mind. There's apparently no attempt anywhere in the bill to limit these things to any recognized set of diagnostic criteria. But even if it were limited, we're talking about a very hazardous exercise.

We've been looking recently at the publication of the American Psychiatric Association, DSM-IV, which is probably the source of the most officially recognized diagnostic categories there is, and it appears to us that we're talking about a lot of vague and highly subjective criteria. I do not, of course, expect you to take my word for it. I brought with me some excerpts from leading scholarly journals in the field of mental health. They are commenting on the diagnostic categories used by the American Psychiatric Association.

First from the Australian and New Zealand Journal of Psychiatry: "First, the introduction of explicit diagnostic criteria and new classification categories in psychiatry took place in the context of a discipline that still lacks conceptual coherence and hence remains easily influenced by ideological, political and market forces. Secondly, there are inherent shortcomings in the design of these classification systems which limit their usefulness and make them liable to misinterpretation or misuse. Except for rare instances, hardly any DSM-IV diagnosis relies entirely or primarily on objective signs or tests."

In the May 1998 issue of the Psychological Bulletin: "The research is perhaps complicated by common sources of error. Two sources in particular are emphasized here: biases in sampling and biases within the diagnostic criteria themselves. The potential for such biases is illustrated for a wide variety of mental disorder diagnoses.

From a Netherlands journal, which I am unable to pronounce, March 27, 1999: "According to the results of recent epidemiological studies, over three million of the people in the Netherlands per year are supposed to suffer from severe mental disorders. The high prevalence should be regarded in connection with the diagnostic criteria and interview techniques applied. The final results of such studies depend upon where one draws the dividing line between clinically relevant mental disorders and normal problems of life."

The same sort of the thing in the Journal of Personality Disorders, summer 1998: "It is now apparent that there are a number of different ways in which the differential sex prevalence rates for the DSM-IV personality disorders could reflect a sex bias, including diagnostic constructs, basic thresholds for diagnosis, biased population sampling, biased application of diagnostic criteria, biased instruments of assessment and biased diagnostic criteria."

Social Science and Medicine, February 1997: "Research in women's health has revealed the difficulties female patients experience in their attempts to receive accurate medical diagnoses. Depression may be misdiagnosed in 30% to 50% of female patients."

Psychiatric Services, March 1999, "Issues in the psychiatric assessment and evaluation of African-American patients include diagnostic bias that resulted in overdiagnosis of schizophrenia."

Commentary magazine, probably one of the leading intellectual publications in the English-speaking world, one that self-describes as small-c conservative, written by a psychiatrist: "What was thought to be true today is often revealed to be false tomorrow. As a result, the final decisions by the experts on what constitutes a psychiatric condition and which symptoms define it rely excessively on the prejudices of the day. Embedded within these hundreds of pages of the diagnostic manual are some categories of disorder that are real, some that are dubious in the sense that they are more like the normal responses of sensitive people than they are to psychiatric entities, and some that are purely the inventions of their proponents."

Now, in that connection we took a look through DSM-IV and some of these are rather suggestive of a phenomenon that this writer is referring to: attention deficit-hyperactivity disorder, oppositional defiant disorder, selective mutism, social phobia, generalized anxiety disorder, premature ejaculation, histrionic personality disorder, narcissistic personality disorder, avoidant personality disorder.

Which of those are supposed to be genuine? Which are simply dubious? Which were the creations of the category writers? I don't know. Nor am I suggesting that it's necessary to agree with all of what these commentators have said. But the very least we should appreciate is that we are talking about very controversial subjects, and at the very least we should also be able to recognize that the diagnosis of mental disorder is at best a hazardous exercise.

This is not to impugn the benevolence or the competence of our mental health professionals. It is simply to question their omnipotence. The issue is not their character or ability. The issue is the nature of their discipline. Inevitably woven into their discipline is a whole question of, how much is it influenced by value judgments, not clinical judgments; by philosophical and ideological preferences?

Take a look at DSM-IV. You see words such as "inappropriate" and "excessive." Those are not scientific words. Those express value preferences-ones that maybe in the circumstances most of us would agree with, but nevertheless value preferences.

Consider the fact that a few years ago homosexuality was listed as a mental disorder and today it is not. The decision to remove it, I suggest, went way beyond clinical judgment. It was also an ethical judgment. The decision was made, largely for ethical reasons, that it was inappropriate to continue treating homosexuals as though they were mentally disordered.

All this might well be acceptable and digestible if we were talking simply about the voluntary relationships between doctors and their patients, but we're talking here about coercive power-the power to confine and medicate people against their will. And it's for that that we have to be so concerned about the risks of having these things affect our judgment, of having these things affect the judgment to use this kind of power against people in our society. In fact, we must be concerned that today's psychological diagnosis could be obliterated by tomorrow's philosophical preferences. That's an awful power to repose in any group of people, and it's for reasons of this kind that those of us involved in the reforms of the late 1970s, as I personally was and as the Canadian Civil Liberties Association was, urged a more restrictive power where these issues are concerned.

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More and more people began to recognize at that time that the ability to distinguish an unacceptable pathology from acceptable nonconformity was beyond the ability of any of our elites to provide. This simply is not a subject that most elites can tell us about. On the other hand, since the ability to recognize an urgent situation was less encumbered by the risk of ideological baggage, there was an increase in the pressures for the coercive power involved to be confined as much as possible to those kinds of circumstances. That's how we got the narrow criteria that have existed in the Mental Health Act lo these many years.

At least as far as the Canadian Civil Liberties Association is concerned, we never believed this was going to have a good outcome. We took the position that it was not possible to have a good outcome. These situations are so painful and so difficult that whatever was likely to happen was going to be a bad outcome, but our position was that narrower powers of the kind that were ultimately adopted were significantly less bad than having a number of open-ended criteria being able to mandate some of the most pervasive encroachments that a society can perpetrate on any individual. it's on that basis that we took the position we did.

I'm sorry to note that, in a very real way, with this bill we are having to relive that history of the late 1970s, because what is involved in at least the two categories I've been talking about here are once more ill-defined, undefined and unarticulated criteria serving as a mandate for the forcible confinement and medication of people against their will. It is the open-ended nature of these criteria that we are speaking against.

It's interesting to note that in our criminal law our society would never stand for this. There we insist on the most objective and precise standards it's possible to create. I do not understand why we are so prepared, in view of the comparable risk to freedom, to countenance in the mental health area what in the criminal area we have no difficulty rejecting.

This brings me back to the conclusion, and that is that the Canadian Civil Liberties Association calls on this committee to reject these two amendments: In our view, "imminent" should be preserved and "substantial mental or physical deterioration" should be removed, all of which is, as always, respectfully submitted.

The Chair: Thank you, Mr Borovoy. That leaves us with about eight minutes, so just under three minutes for each caucus. The rotation will start with Ms McLeod.

Mrs Lyn McLeod (Thunder Bay-Atikokan): Thank you very much, Mr Borovoy. I'm anxious to get you to respond more specifically to a concern about the type of situation in which you feel an individual might be inappropriately and involuntarily admitted to hospital. Obviously, you've said you're not going to deal with the community treatment aspect of it. I guess I'm a little bit concerned in asking my question, so let me be honest about that, because I do feel as though by taking such a broad approach to the issue of definition, in terms of the lack of specificity of definition, you may have also done a disservice to the issue that people are concerned to deal with, which is the reality of mental illness. In using both neuroses and psychoses components of the DSM-IV, which you have used, without separating what may be seen as neurosis and what may be defined as psychosis, I think you've mixed those, and in using an analogy to homosexuality-

Mr Borovoy: I'd be happy to take you through some of the psychotic ones as well.

Mrs McLeod: I guess that's what concerns me. I think the analogy to homosexuality, if I may, is an unfortunate one. It was an unfortunate one at the time. But I think it takes us away from dealing with the concern for-admittedly by everyone who has spoken to the bill and been involved in it, it's a concern for a very narrow population of people who have in fact a mental illness in an acute psychotic state, which is an illness defined by being amenable to medication and for which for a number of reasons that person is not able to take their medication.

I recognize there may need to be some redefinitions in this legislation to make it clear that it's a very targeted population we want to talk about. But if I could get you to focus on that targeted population, if the bill addressed that narrow population, what dangers do you feel the bill poses?

Mr Borovoy: With great respect, I think you are asking me the wrong question. I appreciate the fact that there are numbers of people whom most reasonable people would like to have medicated because of the terrible circumstances in which they're living. I don't deny the reality of that. The difficulty, however, that I think must be addressed is that when you create criteria in a statute, those criteria then become available not only for the people you think ought to be the targets of these powers, but wide varieties of other people as well, because the definitions are that broad that they're capable of sweeping in the others.

Ultimately you can do either one of two things, or either one of three things, I suppose. I don't want to limit your choices. You can rest with the status quo, which is to recognize that it is an unhappy situation, but as I have argued, less unhappy than I suggest will be the situation when open-ended criteria become the mandate for this kind of power.

You can try to redefine what you want to target in a much more precise way than you have. That is another way to go. Then often we have to face at the end of the day which risks you are prepared to incur in a society like ours, the risk of locking up the wrong people or the risk of not locking up the right people, remembering all the time that once we are talking about an urgent situation, the power is there at the moment to act.

Incidentally, on community treatment orders, our position is that they are dependent on the acceptability of the criteria for coercion. If you have acceptable criteria for coercion, community treatment orders could then be a more viable option.

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Ms Frances Lankin (Beaches-East York): Thank you very much, Mr Borovoy. I appreciate your presentation and I think your clarification with respect to community treatment orders is also extremely helpful. I think some of the disquiet people have felt with respect to that section of the act actually does stem back to the broadening of involuntary committal powers. I find myself in such agreement with what you have said, but I think it might be motivated by ideological and values preferences and I'm cautioned by your earlier comments that that may not be an appropriate-

Mr Borovoy: Well, as long as this is between two people on a voluntary basis, it's fine.

Ms Lankin: That's true, it's OK. I think you should know that the committee has had some discussion with previous presenters about the possibility of attempting to clinically narrow the application of the legislation. I think we don't know exactly how to do that, and there's debate, but it is an active issue on the table and you may want to comment on that.

One of the things we have heard so clearly from the family members of people with mental illness, particularly of those suffering from schizophrenia, the most common group that has come forward, is how difficult it has been to deal with the existing law, the barriers they have felt the law has presented them, and how it has prevented them from getting the help they need. We've heard from others that the law itself isn't the problem; it's how it has been interpreted and implemented out there. But that's the imperfect science of law-making and interpretation. I worry that the new law in its complexity will equally have problems of a potentially pendulum-swing nature in its interpretation.

One of the other broadening provisions you didn't talk about is the power of the police to convey someone for psychiatric assessment, the change that they no longer have to observe the behaviour but have to have reasonable and probable grounds, which is a fairly well-established legal test.

The other things you've addressed around imminence and removal of the more vague terminology of mental and physical impairment: I wonder if you could address that police provision. What many family members have told us is that, time and time again, when they do access the police and get the police to come and intervene, the behaviour has ceased by the time the police officers intervened, and the whole intent of these changes is to try and ensure that the person has a right of treatment as well, that they can get the treatment when they're not in a position to make that decision for themselves.

Mr Borovoy: Then I take it, for those purposes, you would be talking about a person who poses a much more imminent peril, if I can use that term without begging any questions. You're talking about the kind of situation where the person would fall within today's criteria, the criteria in the current act.

Ms Lankin: Maybe someone who on an ongoing basis is significantly threatening bodily harm to themselves or someone else, but when the police officer, the figure of authority, is on the scene, they cease that activity, only to resume it again when the person leaves.

Mr Borovoy: I noticed that, and I guess my reaction to it was, "Is this really necessary?" If the family has seen this person behave that way, could not one member of the family then go before a justice and swear and provide the sworn testimony that would be needed under the existing act? In other words, they are the ones who've had the experience. As a safeguard against abuse, shouldn't a society like ours insist that those who have seen it put themselves on the line and swear to it? That's one of the ways we try to protect against abuse in our society. It's hard to imagine a situation so dangerous that either that couldn't be done, or when the police officer comes on the scene, the person isn't behaving in such a disorderly fashion that the officer could act in any event.

The Chair: Thank you. We are out of time. Mr Clark, do you have a very quick question or comment?

Mr Brad Clark (Stoney Creek): Just a quick question.

Mr Borovoy: It may not be a quick answer, though.

Mr Clark: I've noticed. The legislation itself: Did you have an opportunity to thoroughly review the proposed legislation?

Mr Borovoy: To thoroughly review-

Mr Clark: To thoroughly review the proposed legislation.

Mr Borovoy: I've not thoroughly reviewed it in its entirety, no. What we have done is focused on a couple of these things that were issues we have been very much involved in over the years.

The Chair: Thank you very much, Mr Borovoy, for coming before us. We appreciate your comments.

NO FORCE COALITION

The Chair: Our next group is the No Force Coalition. Could they come forward to the witness table, please. Good afternoon and welcome to the committee.

Mr Erick Fabris: Am I to speak now?

The Chair: Yes.

Mr Fabris: Are other people going to be here or-

The Chair: I think you'll find members wandering in and wandering out throughout the afternoon.

Mr Fabris: I'm quite happy to be here and to be able to present to you. I'm interested in essentially re-informing anyone here who has seen the No Force Coalition's statements in the past as to what we stand for and what our position is on community treatment orders. You've got some of the handouts. I believe there are more coming your way very shortly.

What we aim to do as an organization or a coalition is to educate our community and to ensure that information that isn't readily available through other journals or other areas is brought forward to people, including the professionals and family members, who I know you've heard from, some of whom are opposed to the present legislation and some of whom are not.

I'm going to start by simply reading some aspects or some parts of this presentation, starting with the award that was mailed to members of Parliament some two months ago. It is an award, in all seriousness, given to those who would vote against community treatment orders. It says:

"To Ontario MPPs who stand for human rights.

"The No Force Coalition offers this award to those who will vote against community treatment orders, which will be included in the Patients' Bill of Rights," as we then believed it would be called.

"We urge you to consider compassion and to respect the dignity of all your constituents. By forcing involuntary treatment on people struggling to survive in the community, people who are not a danger to themselves or to others as understood in the Ontario Mental Health Act, community treatment orders would strike a deadly blow to our community, and would destroy basic human rights of freedom and choice. They would cause unnecessary hardship, and disgrace a mental health care system still in need of long-awaited reforms, especially the implementation of less expensive supports and businesses controlled by psychiatric survivors, which are proven alternatives, long considered necessary and beneficial to the emotional and physical well-being of people in need or in distress. Psychiatric survivors are wrongly considered dangerous and undesirable, yet we are a people most strongly committed to the betterment of our community, and a group best able to understand the impact of coercive treatment on us, on our families, and on all Ontarians."

It then lists a growing list of worldwide organizations, some of which are actual coalitions themselves, some of which are organizations, funded and non-funded, in Ontario, in Canada, in the United States, in the UK and abroad. They are all organizations that have endorsed the coalition's stand against CTOs. These organizations are not a part of the No Force Coalition. The coalition itself is made up of about 25 groups and individuals. These organizations have come on board. I'd like to read that list a little later.

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I forgot to mention my name is Erick Fabris. I am a member of the coalition and I was asked to represent us here.

I just draw your attention now to the open letter to members of Ontario's provincial Parliament dated April 20, 2000. Again, the coalition was sending in information and mailings that we thought would be of interest to MPPs long before the present government actually tried to put a bill together. We started just after Bill 78, which was put forward by MPP Patten. Since then we've been working on this. So some of this is going to be a little out of date. It's no longer called the Patients' Bill of Rights, for example. This letter reads:

"Thousands of Ontarians strongly oppose wasting tax revenues and emergency services on `community treatment orders.' While the Ministry of Health promises a full continuum of voluntary supports in its policy document, `Making It Happen,' it singularly works to impose forced treatment in the community. This exhaustive reliance on coercion in the guise of preventive care will fail people in crisis and drive them underground. CTOs, as they are being proposed, will offer patients a ticket off the ward in exchange for their basic rights, choices and freedoms, and the cost of this will be overwhelming in both financial and human terms. A broad base of citizens has repeatedly decried CTOs in consultations, in petitions"-we have a petition here that lists some 322 people; for our community that's a pretty good showing-"and in letters! It's time provincial legislators joined their constituents in saying no to CTOs-let's put health care money where it belongs and is needed most!

"Minister of Health Elizabeth Witmer boasts that Ontario has already spent $150 million to prepare for restrictive changes to legislation. According to the ministry, a single `assertive community treatment team' costs $1 million to run, yet serves just 22 clients! There are examples of teams that have been on payroll for months without engaging any clients. Ms Witmer may keep two or three special interest groups happy with such fast spending, but not taxpayers! One such lobby, the `Schizophrenia Society,' holds marches and fundraisers for pharmaceuticals and counsels families to lie to police to get a family member committed." Incidentally, some of their funding does come from pharmaceuticals.

"Police should not have to spend additional hours in admitting rooms to resolve family disputes by forcing someone to take harmful drugs. Only a handful of psychiatrists (ie the so-called `Coalition of Ontario Psychiatrists')"-newly formed-"want the laws changed. The present Mental Health Act satisfies the" vast "majority, saying people who appear to be a danger (or an `imminent threat') to self or others can be locked up and treated against their will. The act even has a `leave agreement' (Sec 27) that works very much like a CTO. So why is Ontario shelling out millions to keep fans of well-endowed pharmaceuticals happy, especially when these groups don't have the facts about the issue?

"The No Force Coalition has enclosed some of these facts in pamphlet form"-again as part of our educational campaign-"and asks that you refer to your constituents' objections to CTOs for further insight. You may have already heard the principal arguments: `Mental illness' does not lead to violence according to decades of research; force doesn't promote health and is avoided by better health practitioners; medications don't work for most people and they often have dangerous effects; cost-effective services that properly assist people in great need or in crisis need recognition and funding-the widely popular service `Sound Times,' for example, operates on $1 per day per visit," by its membership of 450 and including salaries and rent.

It's a peer organization run by peers. It's well respected in the community, both by professionals and by its peers. They deal with some of the hard work of finding housing, of finding people activities. You won't find that in most of the clinical services.

"Sixty-eight groups in Ontario and beyond have endorsed our stand against CTOs, some of them representing hundreds of member organizations, including family groups, service providers and especially psychiatric survivors themselves! They believe CTOs will violate historically protected human rights and will be resisted or ignored. Ask again if your constituents want to pay millions to keep a handful of people from refusing problematical treatments.

"We ask you to speak out and vote against the CTO bill when it's introduced in the Legislature, which may be as soon as this month.

"Thank you."

I won't read through the entire list of organizations that are opposed but I want to bring some to your attention. Let's just go through this: ACHES-MC hails from Thunder Bay; All Saints Church-Community Centre is here in Toronto; Alternatives I believe has already presented to you; ARROW is a local organization as well; A-Way Express Couriers is one of the peer businesses that were mentioned;

Bazelon Center for Mental Health Law you've heard from, in Washington; CKLN Radio is of course a local radio station; Campbell River and North Island Transition Society in BC; Canadian Association of Elizabeth Fry Societies are also interested in this legislation; the Chatham-Kent Consumer/Survivor Network is a peer organization there; the Clarke Consumer Advocacy Group is something similar to the Patients Council at Queen Street; Community Resource Consultants of Toronto, of course, is a larger professional organization here Toronto; Consumer/Survivor Network of Haliburton, Northumberland, Peterborough & Victoria is a recently established group; the Depressive and Manic Depressive Mutual Support Group in the Ottawa-Carleton Region.

Again, some of these groups are not the usual groups that you would expect to oppose this legislation. Many believe in the medical model.

DisAbled Women's Network of Canada is also very interested in this legislation; Distress Awareness Training Agency in the UK-I believe they're an alternative type of group; Edmond Yu Safe House Committee, which of course you've heard about since the inquest; Family Mental Health Action Group, one of the family member groups that is against the CTO legislation; Family Mental Health Alliance; Family Outreach and Response Program. All of these are in Toronto.

Fibremoon Studios is down in the Niagara region; Fresh Start Cleaning and Maintenance, another local peer business; Friendly Spike Theatre Troupe is a local peer-driven theatre group; the Gerstein Crisis Centre of course is renowned for alternative work in this area; the Global Sisterhood Network;

Irren-Offensive from Germany; Kitchener-Waterloo Sexual Assault Support Centre-again many women's groups are also interested in this legislation; Krasman Centre; Labyrinth Group from St Catharines; MadNation is a clearing house of information and they're easy to find on the Internet; Mental Health Legal Committee, whom you've heard from; Mood Disorders Association of Ontario and Toronto; My Friend's Place is a local organization;

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The National Association for Rights Protection and Advocacy in the US; Ottawa Rape Crisis Centre; Ontario Coalition Against Poverty, of course; Ontario Council of Alternative Businesses; Ontario Federation of Community Mental Health and Addiction Programs, which includes 220 agencies; Open City Productions 2002, another art-related group; Parkdale Activity and Recreation Centre, a local alternative centre; Parkdale Community Legal Service; People Against Coercive Treatment; Phoenix Survivors Perth County; Psychiatric Survivors of Ottawa; Psychiatric Survivor Pride Day Committee; Queen Street Patients Council; Rosewood Shelter, Women's Resources of Simcoe;

Saskatoon Sexual Assault and Information Centre; Saskatchewan Action Committee on the Status of Women; Saskatchewan Battered Women's Advocacy Network; Sexual Assault Services of Saskatchewan; Sound Time Support Services, mentioned in the letter; Speak Up Somerset is a peer-controlled initiative in the UK; Still-room Collective Street Health; Sudbury Sexual Assault Crisis Centre; Support Coalition International, which includes 80 organizations in 11 countries, also a clearing house of information on this matter, or in these areas; Survivors Psychiatric Advocacy Network, which is in Lindsay, Ontario;

Toronto Women's Health Network, which includes 100 and more agencies and individuals; UnrulyWomen is another Internet group; West Virginia Mental Health Consumer's Association in the US; Women's Counselling, Referral and Education Centre here in Toronto; York Anti-Oppression Coalition, York University; York University Graduate Students Association; York Women's Centre at York University.

Would it be fair to describe the opposition to community treatment orders in principle and certainly Bill 68 as quite far-ranging? Both families and providers have enlisted and have spoken out. Let's have a look at some of their quotes here:

Tunde Szathmary says, "The concept of community treatment orders in my situation means that you're denigrating my spouse, my marriage, by saying these are not people with their own rights. They can be well enough to make their own decisions. CTOs are just not acceptable because they assume a person will never become well enough. CTOs are institutionalization in the community."

Lana Lam Chau says, "Why force people on medications instead of helping them in their homes? Where is the happiness in depending on chemicals? It feels like a contradiction. A dependency on medication is being created."

Ganesh Pon says, "Anyone who is resistant to medication is going to be aggravated by forced medication. My son has not improved by being on medication. Forcing the medical model is tunnel vision."

Danuta Zbromsky says, "Medication has helped our family. He functions much better. However, we are aware there is no cure so we make the best of the time we have. He has been able to work part-time. But I am concerned about the violation of his rights. Let's try other alternatives first."

Pat Oldaker says, "Education about the existing laws is what is necessary"-I know that this government has done some of that work-"I can't imagine ever using a CTO on my daughter."

Hella von Delm says, "I believe we already have enough laws to take care of patients in crisis, but we cannot allow all patients to be forced to give up their rights of self-determination. This is taking away all hope for a future as a well person. There have been successes in treating schizophrenia without medication for life, or even many years."

Service providers obviously are also on side with the No Force Coalition.

We have Dr Bonnie Burstow saying, "As an Ontario psychotherapist, I am appalled by the government's intention to bring in community treatment orders-a measure appropriately known in the psychiatric survivor community as `leash laws.' Community treatment orders are about control and tyranny, not help, and they violate freedom and decency. They threaten the well-being of all Ontario citizens who have ever come in contact with the psychiatric system or who ever may."

Cathy Crowe, whom you may know as a community health nurse, is the coordinator of the Toronto Disaster Relief Committee. She says: "I've been a community health nurse for 20 years, for the last 12 as a street nurse, working with people who are homeless. I know I will never ever use CTOs. The Mental Health Act functions adequately to protect people who become very ill. Yet it is no substitute for the care and support some people need on an ongoing basis and that includes competent and caring community-based mental health care, decent housing, mental and emotional health supports and enough money to live on. These are the building blocks for dignity for people with mental health problems. Forced treatments, via CTOs, will simply strip people of the last vestiges of choice in the health care system. It makes me think of bad medical experimentation on people. It also makes me think of what happened in early Fascist Germany," which is not just a metaphor, by the way.

Continuing on the next page, Cheryl Rowe, an MD, FRCP and a community psychiatrist and assistant professor at the University of Toronto, says: "CTOs are unnecessary and have the potential to violate human rights and damage the doctor-patient relationship. We have other laws to protect an individual and society. We need help in building relationships with patients and creating mutual understanding and respect so that people can make good choices for themselves and their treatment."

You may have been interested in this person's credentials. Some of the individuals who signed up have credentials that are just as impressive.

Another person who speaks out against CTOs is Victor Willis, the executive director of the Parkdale Activity and Recreation Center: "When an ill-conceived law is put into place we must oppose it or we give up our rights when further bad legislation is created. The proposed change to the Mental Health Act, specifically community treatment orders, is an example of an ill-conceived law. Quality of life does not come from a needle or a pill. It comes from homes, jobs and friends. As someone who grew up with a parent who had a diagnosis of a major mental illness, I am appalled."

Maurice Adongo, a street outreach worker with Street Health, says: "According to the government, the CTOs will help provide treatment for people in the community, but they should ask themselves one question, `For a homeless person, where is that community going to be?' In the parks? Or under the bridges? How are we going to force medication on people who do not even have a place to store the pills? CTOs are nothing but a cruel joke for the homeless people who are battling mental health problems. I'll be glad for the day when our government wakes up and starts dealing with real-life issues like providing dignified housing as a starting point to help people put their lives back together. How many times do we have to continue repeating these obvious things?"

Trish Spindel, a professor of social services at Humber College, says: "CTOs are nothing more than the use of coercion by those with power against a vulnerable population which is unable to defend itself. Coercion has never improved anyone's quality of life, nor is its use effective in preventing harm," which of course is backed up by studies the Bazelon Center has presented. "CTOs will result in the `relaxing' of innocent people's due process rights, further expansion of both biomedical and police powers, and they will not produce the `results' which the government is trumpeting. If government was to put half as much energy into supporting people through decent housing, a wide range of community support options, and a guaranteed annual income, as it is putting into trampling on people's rights in the name of helping them, we would be a long way down the road to building a decent society in which people who have been labeled would feel more secure and less threatened."

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Barbara Cadotte, a systemic policy adviser at the Psychiatric Patient Advocate Office, says: "Our current legislation has developed over many years, through consultation to improve the delivery of mental health care and the incorporation of legal safeguards to protect the rights guaranteed under the Canadian Charter of Rights and Freedoms. The proposed measures to permit community treatment orders will not ensure people will have access to the best treatments available, including access to the best medication with the fewest side effects, nor will it provide early intervention by knowledgeable health care workers. Further, using resources to forcibly treat individuals (or to track down people who choose not accept the prescribed treatment) diverts attention from the need to ensure a better continuity of mental health care, and access to a range of resources for those who require them."

Lynne Raskin, executive director of Alternatives, says: "Living in the community gives us the right to make decisions about our own lives. All of us have both rights and responsibilities as citizens and there are laws to ensure that criminal transgressions are duly addressed. But when a society begins passing laws that infringe on the civil rights of a distinct group, we violate ethical codes, human rights and we chip away at the moral fabric of that society. Community treatment orders do just that: Orwellian laws for a group of citizens who will be left with fewer rights than the rest of society. Undoubtedly, this will result in fewer people wanting to seek help from a system that blatantly espouses disrespect and disempowerment and fewer people wanting to work in a system that turns support into whistle-blowing and paternalism."

I'm a psychiatric survivor myself. I just wanted to show you some suggestions that were worked out at a meeting approximately two years ago, or was it one? It was a long time ago; it feels like two.

I'm going to talk about some alternatives to some of the force that is being promoted in this legislation. These things won't be forced in Bill 68. You wouldn't imagine psychotherapy being forced upon you, you wouldn't imagine affordable and safe housing being forced upon you-I wish that were-you wouldn't imagine peer support programs, consumer-survivor-run services and initiatives being forced, but these are some of the alternatives we need to look to in order to ensure that the money we put into mental health actually starts to work for people.

A wider range of choices in treatment and therapy should include non-coerced services; real employment, such as peer-run businesses; a parliamentary review of the costs and aftermath of this bill, of CTOs in Ontario, should be done; protections and accommodation in the workplace; enhanced independent legal protections against institutional abuse; a response to child abuse, to child assault and emotional trauma; a response to women abuse-rape, battery and emotional abuse; more support programs such as social and recreational-

The Chair: Excuse me. I just wanted to put you on notice that you've got about one minute left in your presentation.

Mr Fabris: OK. I'll just open the floor for questions if I have the time.

The Chair: Sorry, we wouldn't have the time to do the rotation; if you want to just finish off with concluding comments. We could hardly state our names in 60 seconds, never mind pose a good question.

Mr Fabris: I guess you can read the rest of these alternatives. There's not much to say at this late date. We've presented the information to you numerous times. I just hope you've received. I hope you can read it now if you haven't looked at it already. Please consider the pamphlets not as trinkets but as distillations of much more serious research that you will find, given that they quote where that research comes from.

Given our presentation, not as the mental patients presenting, ask yourselves whether or not the suffering of some family members is equal to the suffering of some mental patients. Ask yourselves whether there is inequality in the service between those who are not given treatment and those who are given treatment but it harms them. Ask yourselves if this bill is simply expanding criteria to give the public a sense of safety when the present act gives them that safety, according to Michael Bay. That's all I'd like to say today.

The Chair: Thank you very much, Mr Fabris. We appreciate your taking the time to bring your perspective before us here today.

Mrs McLeod: I'll apologize if the committee has already asked for this. I'm wondering if it's possible to get a clear statement about the status of electroshock treatment in Ontario's psychiatric hospitals.

The Chair: I don't know whether it's fair to ask Mr Clark. Is that what the researcher has just-no.

Mrs McLeod: One of the pamphlets was on electroshock treatment. I think, as we talk about the issue of any kind of involuntary treatment, that's one of the issues we should be concerned about.

The Chair: We'll ask research to bring you back a definitive answer.

Mrs McLeod: I appreciate that. Thank you.

Ms Lankin: As long as we're on research matters, I wanted to follow up on a request I made. The days are all blurry at this point, but I think it may have been at the subcommittee meeting prior to the beginning of hearings, where I had asked for a summary of the Mental Health Act and amendments and changes, the pre-1978 and post-1978 regime. I'm wondering if anyone recalls that I had asked for that and if work is underway.

Ms Lorraine Luski: Work is underway.

FAMILY MENTAL HEALTH ALLIANCE

The Chair: Perhaps we could call forward the next group, the Family Mental Health Alliance. Good afternoon. Welcome to the committee.

Ms Tunde Szathmary: I don't know how much I will have to say, but I'll try and leave some time for questions. I'm sorry that I didn't get our brief done in time so that we could actually distribute copies, but hopefully by the end of the week I'll have it finished and to you.

My name is Tunde Szathmary. I'm the coordinator of the Family Mental Health Alliance.

The Family Mental Health Alliance is an umbrella organization of family self-help groups, agency and/or hospital family support programs and individual family caregivers in Metro Toronto. The alliance began as a networking effort in 1995 to enhance the capacity of family self-help organizations to help families and friends cope with mental illness and mental health problems in their immediate circle. The opportunity of coming together also opened the way to amplifying the voice of families and informal caregivers in mental health planning and formal system design. Through the sharing of information and the articulation of the family perspective on a variety of issues, the steering committee of six group or program representatives and six individual family members reaches out to 11 other local family groups as well as government and other stakeholders in the mental health system.

Our interest in CTOs began about two years ago, when we realized what a divisive issue it would be for the family sector. Up until that time we felt that families had made significant inroads through mental health reform. In the past, the relationship among stakeholders, particularly towards families, was very adversarial, and we saw the beginnings of a new partnership where the dire straits of families were sometimes raised not only by family members but by consumer-survivors and service providers who were open enough to hear what we had to say and carry our concerns forward with the same legitimacy that they carried their own concerns forward.

We started our approach to CTOs, therefore, by trying to inform our community of families what it was about and trying to present all points of view. We basically produced a paper, called Community Treatment Orders: Solution or Symptom, in which we looked at the attitudes the consumer-survivors might have about it, and some family members, that CTOs make community tenure look like a lifetime probation, that treatment recommendations look like parole restrictions or bail conditions, that hospitalization feels like punishment for disobedience or jail for the crime of illness and deterioration.

We wondered what this would do to our relatives and what it would mean for us. We were concerned about enforcement and whether the responsibility would twist the therapeutic relationship into something that wasn't therapeutic. We wondered if the responsibility ultimately wouldn't devolve to families, the way so much of everything else has. We were concerned about breaches in civil rights and in human rights. For caring family members, there's a real horror of seeing their family member as totally discredited and discounted.

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We asked why our relatives and other people become non-compliant with medication and we looked at that issue, because the implicit assumption in CTOs is that repeated hospitalization or relapse is caused by treatment non-compliance. We came up with a number of answers. I won't go reading all of them now, but essentially the answers are not much different than the reasons for non-compliance among seniors, 50% of whom also don't comply, and other people in the community who are dealing with heart disease or other illnesses. We wonder why, then, this applies only to our consumer-survivor relatives and other consumers-survivors in the community.

We concluded, after our evaluation, that treatment non-compliance was multifaceted and required an appropriate response in every case. A one-size-fits-all CTO would be a disservice to our relatives. It could even be dangerous because of the possibilities that come with CTOs. There are very severe adverse side effects: tardive dyskinesia, neuroleptic malignant syndrome and other kinds of morbid and mortal risks. The system sometimes enhances racism, and CTOs could lock in a person very inappropriately. There is an increased stereotyping of people with mental illness as dangerous, ignorant or inherently uncooperative in some of the criteria that have been put forth for CTOs. We're afraid CTOs would increase the stigma for help-seeking, and there's always the increased potential for abuse. As much as I like to defend families, there are always problems and there obviously have been incidents where families have abused relatives, as have other caregivers, and we feel that kind of risk needs to be taken very seriously.

The potential for CTO to be seen as an entitlement for service that could force service provision, or a service order, in other words, could barely balance the risks, in our estimation. Everything would lie in how the CTO provisions were laid out. We felt that with the inadequacy of system resources now, CTO would merely cover system failure and do violence to vulnerable individuals who are already vilified in our society for their mental health problems.

Bill 68, Brian's Law, basically has said it heard from families. The FMHA and the families it has talked to are not in support of CTOs. We have grave concerns about forced treatment, not only because of some of the elements that I mentioned above, but because of the nature of treatment which usually devolves to drugs. Please don't misunderstand us on this. Families by and large are in favour of medication. However, we see that the revolving door of repeated psychiatric hospitalization is due as much to the failure of medication as it is to the induction of relapse by stress from poverty, idleness, loneliness and insecure futures in housing and treatment services. Medication non-compliance is just one part of it. We believe that the benefits of medication are and can be made self-evident with appropriate community supports rather than CTOs.

In The Psychotic Patient: Medication and Psychotherapy, 1985, Collier Macmillan, Dr David Greenfeld notes that consent can be obtained with patience, sensitivity to the client's own dissatisfaction with the experience of psychosis, and honesty about alternatives. Success requires an intensification of time and effort, which are much more benign to the client than force. More recently, Healey et al described the use of a new psychological intervention called compliance therapy, which was more effective and cost-efficient than the usual counselling. These items are referenced in my paper. Non-compliance with medication, which is the implicit issue in the hospitalization criteria of Bill 68, can be better handled without legislation which places people at risk.

There is an underlying assumption in CTOs for medication, that medication is always beneficial and that errors in treatment are benign. At this time I would like you to think about Ewan Fastofsky. Gabriella, his mother, is in the audience today. She survives her only son, who died at age 38 this past January 5. Gabriella has told us that Ewan died of thromboembolism. She had been concerned about his deteriorating condition since last October and her appeals to his doctor were largely ignored. In grief, she went to the Metro reference library to investigate why her son died. In a volume on pharmaceutical and specialty drugs, she discovered that Clozapine, the miracle drug we have all heard about, came out in the 1960s and was banned in Sweden because of a link to thromboembolism. It was only last week that I downloaded an article from the Internet which reports that a Swedish study on thromboembolism was published in the Lancet this April 1. Gabriella asks you to enforce the laws on informed consent for people who will ultimately bear the risks of the range of adverse effects which accompany any serious psychiatric medication. Her son should have had a chance to say no without the backdrop of CTOs if he did.

The FMHA would ask you also to ensure that substitute decision-makers who step in for their relatives when they are incapable of consent be similarly fully informed and free from pressure. We would like the decision of a substitute to err on the side of caution to be respected in the treatment centre. Lana Lam Chau, who is also in the audience today, is a mother who lost her right and her son's right to have her make decisions for him because she disagreed with his doctor's advice. Her son, Thai, 37, is called uncooperative, but Lana tells us that he is scared of the staff involved in his care. He has not stabilized with the treatment imposed and Lana fears he never will while it continues without his or her input. The system does not appreciate that ethnoracial derivation may make the usual script of treatment inappropriate. Lana asks you to ensure that a substitute's authority to follow prior wishes or assess new ones according to the substitute's knowledge of the values and the beliefs of his or her relative will not be challenged. Most specifically, ethnocultural and ethnoracial factors need to be accommodated. The Family Mental Health Alliance agrees. Bill 68, however, introduces several amendments which would allow strangers to intervene.

The FMHA believes that overriding a substitute decision-maker is in most cases fundamentally wrong. It is also concerned that Bill 68 amendments could be used to force an unwilling substitute to consent to CTOs or risk losing any formal place in the protection of a relative's interests. You may point out to me that the system is there for our relatives. It didn't work in the case of Regis Belmar.

Mary Belmar is here today as well and wants me to tell you about what happened to her son, Reggie, 39, who died last July 14 through a series of misadventures in the mental health and the health care systems. His death was the culmination of a woefully inadequate response to a medical condition, compromised by physical restraints that were placed on him when he got upset over being transported to hospital by a community worker who offered to take him for a ride. Reggie had not been in hospital for eight years and didn't like it because of an untreated infection he had suffered there years before. He was doing all right except for weight gain, which led him to go off his meds. In trust, he told a community worker, and ended up subdued, involuntarily hospitalized and vulnerable. Mary would ask you to reconsider the issue of betrayal that's inherent in CTO enforcement. It can backfire tragically.

These women and countless others have experienced a variety of traumas in the mental health care system and they fear, quite reasonably, we believe, that CTOs may be a way that the system can avoid looking at itself for faults. It is in the nature of families, as it is in the self-help and mutual aid groups which gave rise to the FMHA, to be concerned about systems issues like quality of care.

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The FMHA believes that it would be complicit in an unknown and as yet unknowable level of suffering if it did not reiterate its message of caution about CTOs. The mental health system needs to be resourced adequately first so that it is able to provide the time and the expertise to individualize treatments and supports. If, after all the alternatives are tried, a rare individual may need something like a CTO, we'd all have a better idea of who needs it and why. Fine-tuning legislation may then work, as Bill 68 does not.

There are a number of issues that we found in Bill 68 and these are the parts that I didn't quite manage to get typed up. Essentially, some of them have to do with the mishmash of criteria for getting someone in for an assessment. One of the elements that we were concerned about was the criteria for finding previous treatment for a disorder with a likelihood of harm. We don't believe we've ever seen any research that indicates that there is a disorder likely to cause harm. That is not one of the classic signs and symptoms. Basically, that kind of criteria is unworkable.

We also had trouble with the criteria that talks about having shown previous improvement to treatment. There is research certainly in the mood disorders field, which is my family experience and where I come from, that interrupted treatment very often means that the treatment that was effective previously is no longer effective. You cannot assume just because someone has had a particular kind of illness at one point and has had a particular kind of treatment at one point that it will be effective again, and the criteria really rest on that.

The same kinds of things actually come up in the CTO criteria. We found a couple of other problems there. We were concerned that part of the criteria had to do with hospitalization: accumulative, 30 days, or in-patient two or more times in three years. This suggests that hospitalization is a sign of failure. Sometimes hospitalization is a sign of success. People who need help would be wise to go to hospital, especially if they're suicidal or homicidal. Sometimes people have breakthroughs for no reason whatsoever to do with treatment. I mentioned earlier the issue of stress. I could relate one very stressful incident from my own family this past January. My father-in-law was dying and my 85-year-old mother-in-law asked my husband to look after his father overnight because she needed rest. They could not get home care. I urged him not to do it because of the risks but he did it and within three days he was manic, after five years of being somewhat level. He ended up spending a week in hospital. He did not do anything that would justify having his hospitalization held against him, so I have concerns about that kind of statement in criteria.

We were concerned also that the nature of the plan was not clearly defined as to what could be included and what couldn't. Could, for example, part of the plan deny people access to their friends in the consumer-survivor community? In the past, very often staff in hospital would not allow a consumer-survivor to come back and visit friends once they were discharged. A lot of service providers and family members are sometimes suspicious of the consumer-survivor movement because they're afraid that it will convince them either that the families are to blame or that treatments don't work and it would make them non-compliant. We wonder what kind of restrictions can be included, since none is specifically excluded.

The Chair: Excuse me, Ms Szathmary. We're at the end of the 20 minutes but I'd like to allow you another minute or so if you've got any concluding comments.

Ms Szathmary: One last conclusion and this would, I think, be most addressed to Mr Patten.

We found that the same elements that were in his proposed amendments a year or two ago when a person did not comply with CTO or the release conditions held. That specifically was that the person would be notified that they had abrogated the agreement and a whole set of conditions or steps would follow in which they would be notified and they would be offered assistance to help in compliance etc. What concerns us is that one of the elements there is, if a person is dangerous to himself or others, those kinds of steps ultimately will delay very necessary treatment. There are a number of little points like that that we would like to make in our final submission.

The Chair: Thank you very much. We appreciate you and the members of your association coming down before us. We know how difficult it is to share those stories with us, but we truly appreciate your taking the time to come down and be part of the hearings on the bill.

RUTH MALLOY

The Chair: Our next presentation is from Ms Ruth Malloy. Could Ms Malloy come forward. Good afternoon. We have 10 minutes for your presentation.

Ms Ruth Malloy: I can tell you about myself. There are three things I really like doing a whole lot. One is making trouble, one is talking about my kids and the other one is answering questions.

The Chair: You'll have trouble deciding between number 2 and number 3 then in the time that you have.

Ms Malloy: If I don't get questions, I'm going to start making trouble and talking about my kids.

The Chair: Please proceed.

Ms Malloy: I may begin. I worked really hard on this. It doesn't answer all the questions, but it says some of the things that are in my heart.

My views on schizophrenia have evolved over the past 20 years through living and working with people with schizophrenia, formal study, reading books and journals and attendance at conferences and public forums, augmented by daily contact with three wonderful children who suffer from schizophrenia.

From where I sit it looks as if CTOs and the abandonment of the dangerousness criterion for involuntary treatment would help people with schizophrenia to enjoy more freedom and to live consistently fuller, more productive lives in less restrictive community environments. What I don't understand is, why have you waited so long to do this?

Please let me emphasize that it is not the intent of the proposed amendments to take away any of the genuine rights and freedoms presently enjoyed by the mentally ill. The target population for CTOs would be that small proportion of the mentally ill who lack insight into their mental state, have a history of robust response to medication, repeated readmissions to hospital and a chronic history of treatment non-compliance. Others have no reason to fear loss of autonomy.

Rigorous scientific investigation suggests that schizophrenia is a brain disease. The schizophrenia syndrome originates from neurochemical overactivity in the part of the brain where raw incoming sensory stimuli are sorted and formulated into thoughts and perceptions. The symptoms typically include two or more of illogical thinking, social withdrawal and false perceptions, such as hearing voices, and false beliefs that seem so totally real that it is impossible for another, no matter how eloquent their arguments, to reason them away. These symptoms respond well to traditional anti-psychotic medication, and the medications are safer than aspirin. My son swallowed 73 pills on one of his three suicide attempts.

In addition to the florid symptoms, there is a broad spectrum of treatment-resistant deficits, such as impaired memory and concentration, loss of abstract and analytic thinking, loss of self esteem and feelings of persecution which are masked by more florid symptoms during acute episodes. I'm going fast so I'll have more time for questions.

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The deficit symptoms are frequently mistaken for medication side effects because they do not become apparent until after the medication has removed the more florid symptoms. New medications that help to relieve some of the deficit symptoms, in addition to the more florid ones, have come on the market recently. My son and one of my daughters recently changed to Olanzapine. They both like the new drug. According to my son, the switch to non-traditional medication "gave me my life back."

In about a month they will experience the full benefit achievable on their present dose, and the physician will adjust the dose accordingly. My other daughter, who went on Clozapine in February, is finding that her voices are getting softer and less frequent and I am noticing that she is thinking more clearly.

I have to make a reference to the former speaker. There are an awful lot of people with schizophrenia who die from suicide. In fact, the rate is one in 10 and 40% try. So there's a death rate there that needs to be considered when you're looking at what happened to her son.

When anti-psychotic medication, the penicillin of schizophrenia, was developed in the mid 1950s, community care for people with schizophrenia became workable. On the other hand, it takes up to three months of continuous treatment to achieve maximal benefit, and ongoing prophylactic dosage is essential to achieve maximal blockage on the neurochemical overactivity. Deterioration inevitably takes place when an individual stops taking their medication.

Using CTOs to keep people living in the community on their medication would virtually eliminate rehospitalization due to medication noncompliance. In one early study in the United States, for example, 95% of people with schizophrenia readmitted to hospital were not taking medication at the time of their readmission. Moreover, compliance is frequently confounded by the individual's lack of insight into their own mental state. Approximately half the people with schizophrenia do lack insight into their mental state. Dogged insistence on voluntary consent to treatment does them a gross injustice. Without anti-psychotic medication, all the services and all the freedoms in the world are of no use. Sadly, a return to custodial care in large institutions would be the only compassionate alternative to medication.

My daughter once tried not taking medication. She eventually withdrew to her room where she fantasized herself to be held prisoner by aliens who were sending vibrations from outer space. She could have starved to death if she had been living alone. She was not ready to benefit from services again until after she had resumed pharmacotherapy.

A brief word now about the proposal to abandon the dangerousness criterion for involuntary hospitalization. I strongly support this proposal. Dangerousness is far too difficult, even for seasoned experts with years of experience, to assess accurately. Consequently, it is too awkward and clumsy a criterion to have realistic value. Furthermore, it permits many people who are afflicted with severe mental deterioration and desperately in need of compassionate intervention to slip through the cracks. I once waited five months for my daughter to become sufficiently psychotic to be admitted to the Clarke.

Speaking again from where I sit, it looks as if a significant proportion of those homeless who have died on our streets, mentally ill persons shot by terrified policemen and bizarre slaughters of family members, likely involved people with untreated schizophrenia who would undoubtedly have benefited from CTOs. Furthermore, abandonment of the dangerousness criterion for involuntary treatment would reduce poverty, unemployment, marriage breakdown, child abuse and the need for psychiatric housing, in addition to diverting more people with schizophrenia away from the justice system.

The Chair: Thank you, Ms Malloy. You were able to use number 2 to great effect. You've left only a few seconds before the end of the 10-minute mark. If you had any other closing comments I think rather than try to play Solomon here-

Ms Malloy: I could comment on some of the things I've been listening to.

The Chair: If you can do that in a minute or so.

Ms Malloy: A lot of these things have really big holes in them as arguments. I remember one night my son had had a few beers. A person who has schizophrenia who is also a substance abuser can be very dangerous. That's enough about the dangerousness thing. We were just in absolute terror. He was burning himself with cigarette butts. He wasn't making very much sense. He was carrying a knife around the apartment. I ran for security. His two brothers, while I was talking to the police, both came down and asked them to hurry, and he went off like a little lamb. And you know, he didn't hold this against us, that we made him go in. It didn't destroy the therapeutic relationship. In fact, I have worked with people who will go and ask to be put in restraints because they know they have an episode coming on.

Any questions? OK, I'll go on talking about my kids.

The Chair: We've actually gone over the 10 minutes, but we very much appreciate your bringing your perspective to the committee hearings today. Thank you very much for taking the time.

ASSOCIATION OF GENERAL HOSPITAL PSYCHIATRIC SERVICES

The Chair: That takes us to our next presentation, from the Association of General Hospital Psychiatric Services. Could they come forward, please. Welcome to the committee. We have 20 minutes for your group presentation this afternoon. If you care to leave time for questions and answers, that's your prerogative.

Ms June Hylands: Thank you. I think we'll have time for questions. We certainly hope so.

I'm June Hylands, the executive director of the AGHPS. With me is Dr Turner, the president. We would like to thank the committee for the opportunity to be able to respond and give our perspective on the mental health amendments.

The Association of General Hospital Psychiatric Services has been in existence since the early 1980s. We represent about 50 general hospital and schedule 1 facilities. These are hospitals that are all over the province. Our board is comprised of about 20 members and is in a unique position in that it is made up of chiefs of psychiatry and directors of mental health programs, so it really gives a comprehensive perspective on the general hospitals' viewpoint.

We are responsible, as you know, for in-patient, outpatient, day surgery and emergency services, and therefore we represent the mental health providers who will be responsible for implementing the changes that occur as a result of these amendments. What we would like to focus on today is the implementation of these amendments.

Dr Ty Turner: My name is Ty Turner. I'm a psychiatrist. I'm the president of the Association of General Hospital Psychiatric Services. I'm also the chief of psychiatry at St Joseph's Health Centre in the Parkdale area of Toronto, one of the busiest hospitals in the province. Before that I was the chief at Doctors Hospital. I've been in the mental health system for over 35 years. Before I became a psychiatrist, I was the first provincial coordinator of the Psychiatric Patient Advocate Office, a program of the Ministry of Health.

I just want to amplify some of what June has said and then expand a bit further.

As general hospitals, having 24-hour, open-ended intakes called emergency departments and being empowered under the Mental Health Act, we are really it for the most part for this legislation. We're the ones who are going to be required to implement it. We have very significant concerns about the implementability of these proposed changes to the act.

In our setting, in hospitals, if a person is apprehended in the community by the police, conveyed to a hospital for psychiatric examination, detained and, if necessary, restrained and examined, this happens in our hospitals for the most part. If the person then is ill and meets the Mental Health Act criteria for commitment, it's generally to our hospitals. If somebody is really ill, ill enough to be on one of these proposed community treatment orders, it's very likely that the designated psychiatrist is going to be one of our staff, because often the community treatment order will start with a hospital admission.

I'd like to provide a bit of context about what's happening in the general hospital system. As I'm sure everybody here is aware, the mental health system has been very significantly downsized. There has been a policy geared towards reducing the number of beds in the mental health system in Ontario, from about 58 per 100,000 to about 35 per 100,000. In some parts of the province we're probably at or below that number at this time. Most of the bed reductions have come from or are expected to come from closing down provincial psychiatric hospital beds. Some, probably a small number, will come from further erosion of general hospital beds.

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In this downsized system, we have very significant problems in respect of general hospitals, for the most part within the context of mental health reform, not having achieved significant recognition for our role, and to some extent we have to accept responsibility. We haven't always had our act together. For the last few years, for the most part we've been dealing with hospital restructuring. Some of our hospitals have been closed, others have been amalgamated and this has preoccupied us. We're about ready to come out of that now and begin to offer perspective.

We also have very significant issues in respect of staff shortages. We're currently depleted by about 200 psychiatrists. These, for the most part, are the physicians who will be required to implement the Mental Health Act changes. We have shortages even in alleged overserviced areas. Let me tell you, I just came down from Timmins where they only have two psychiatrists. Covering 24-7 with two psychiatrists is pretty difficult. In Kenora they have two psychiatrists. In Sault Ste Marie they only have three psychiatrists. I think if we go across the province, we'll find these shortages are reasonably prevalent.

When we do find small numbers of psychiatrists, often we'll see that these psychiatrists tend, like myself, to be rather middle-aged and over the next 10 to 15 years will be coming up for retirement. The other day I was speaking to a chief of psychiatry at one hospital who was telling me about a five-person rotation covering 24-7. Four out of five psychiatrists are over 60. There have been significant problems attracting and retaining psychiatrists to work in general hospitals.

We've also had issues around dollars. I'm sure you know a lot about this. Basically our budgets have been protected but that means flatlined, and flatlined for the last four or five years. We've actually had some loss in terms of that aspect of the budget that helps to retain psychiatrists called sessional money. That was reduced by 25% back in 1993. With the current OMA agreement, that will be restored back to 1993 levels. This is before we had the major part of the bed reductions I've just referred to.

In respect of the specifics of the proposed legislation, I see two general areas. One is about community treatment orders, and I'm sure you've heard a great deal about that. The other part of the proposed changes will probably impact even more on our work.

In terms of the first, the community treatment order, I'm sure you've heard a lot of opinions on both sides. I can say that within the psychiatric profession there is some controversy about community treatment orders and their ability to truly function, their acceptability by psychiatrists, the degree to which they will be utilized, and also how effective they are in terms of not only protecting patients and their families but also protecting very scarce resources. I know the focus of these proposed changes is not about resources, but I think we need to have the kind of reality check that would be helpful in terms of knowing what the actual implementation of these changes would look like. So we're not sure about the community treatment orders.

In terms of the other side of the proposed changes, having to do with loosening the commitment criteria and with enhancing or enabling police apprehensions, these are actually designed to bring more people into hospitals and cause more people to be kept. Ladies and gentlemen, quite frankly, as somebody who has been practising in hospitals and has practised in over 20 different hospitals over the last 25 to 30 years, I don't know how we're going to do it. I have no sense of how we're going to achieve the objectives of this act. I'm very concerned that the act, which was born out of noble and altruistic intentions, could become discredited through its unimplementability, if that's an English word.

It causes me to think about some other jurisdictions where legislation like this was passed, such as in Washington state in 1982 when commitment criteria were opened up and there were floods of patients coming into the hospitals and this created great disorder; or in Italy in 1978 with law 180, where there was a major deinstitutionalization, developed and passed by the Italian Parliament with no significant implementation plan. That law became discredited, not out of the intention behind the law but by major difficulties in implementation.

So we're very significantly concerned here, and as a result of that, flowing from that, our recommendation is very simple: that however legislators decide to deal with these proposed changes, whether to pass them or not, whether to amend them or not, the law not be proclaimed until we have an adequate implementation plan.

In Ontario we have a precedent for this. In 1978 the Honourable Dennis Timbrell led the passage of amendments to the Mental Health Act that we're currently seeking to reverse to some extent. There were two sections, 66 and 67, which had to do with mandatory notification of the legal aid plan and provisions for more due process at commitment hearings before the administrative tribunal. If I recall, these sections were not proclaimed until six years later. In the AGHPS, we're not necessarily recommending six years. We're just recommending that proclamation be delayed long enough to allow the stakeholders to come together with government and develop a suitable plan for implementation.

That pretty much completes my presentation. June, would you like to add to that?

Ms Hylands: Just to reinforce that, our association's position is that we conceptually support the amendments to the Mental Health Act. We feel it would be a tragedy if they were not implementable. We congratulate the government on the profile that's been given to mental health and the sincere effort, and we'd like very much to work with the government to ensure this is implemented in a way that is constructive and useful. We sincerely believe that the stakeholders within general hospitals and schedule 1 facilities need to be involved in forums and in a meaningful way to establish the mechanisms for doing that.

We thank you once again for your time and we welcome any questions.

The Vice-Chair (Mrs Julia Munro): Thank you very much. We have about three minutes per caucus for questions; I believe, in rotation, we're with the government members.

Mr Clark: During the consultations I had this last round, the issue of implementation and proclamation came up quite consistently. One of the concerns that was raised by a number of groups was similar to your position. Is it your position in essence that the entire bill should not be proclaimed until there are sufficient resources to allow for success? One of the concerns I raised during the consultations was that we can do all the legislative reform we want, but if we don't have the resources in the community to support the patients, it's going to fail. Would you care to comment on that?

Dr Turner: As an association, we would want to see the entire legislation reviewed in respect of implementability, though there are really these two broad areas. The area where we are most concerned about implementation has to do with loosened commitment criteria and with facilitated police apprehensions. They're the ones that are really going to strain the system even further. These are the ones where I would say the concerns about implementation are particularly grievous.

Ms Hylands: Also, I think our concerns around implementation are not exclusively around resources. Obviously that's a major concern and I know it comes up consistently. But we are concerned in areas regarding governance. Who will be a designated psychiatrist? There are many questions we don't have answers for that are not tied directly to resources, and that would certainly go a long way.

Dr Turner: There are issues such as, what if a psychiatrist doesn't want to participate in the legislation? There are concerns about psychiatrists' resistance to participation in respect of the Saskatchewan legislation, and we've heard about that in other jurisdictions.

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Mr Patten: Thank you for your presentation. I will read your questions in detail because I think we as well have been asking some of the questions you ask. They will certainly stimulate some suggestions for amendments.

I think your point about the resources is absolutely and totally fundamental to the whole backdrop of this. I, for one, have always said, "Don't consider implementing this if you're not prepared"-this government or any future government-"to back it up with additional resources." It requires additional resources and you talked about a couple of ways in which that would put pressure on it.

In terms of the community treatment agreement or plan, as I would call it-I don't like the term CTO actually. I think it's almost a punitive term and it comes from a court historical backdrop from the United States. I think it's a different context. It's actually from a court and it is an order. I think we're trying to get at a different thing here, with a very small population of people, maximizing the consensual model.

Having said that, right in the criteria is the fact that there must be demonstrable evidence to show-by agreement. You can't put together a plan without having your community partners-agencies and professionals-who are part of the plan. They must be identified. So if there are not the resources there, they cannot move forward with that particular plan. I think it's a safeguard. I would welcome your reaction to that.

Dr Turner: That would be a safeguard. Actually, we'd like to see the same attention to safeguards on the other side of the act, to facilitate police apprehensions and the loosened commitment criteria. I guess what we're saying is that as general hospitals funded through the public purse, we see ourselves as instruments of social policy, of public policy. We just want to be shown how we can make public policy translate into an everyday reality.

Ms Lankin: I have two questions I'm going to try and get in. The first one: Addressing, Dr Turner, the comments you've made about resources, I've spoken to the heads of psychiatry of a number of general hospitals-I've put this on the record a few times already-who have, similar to what your association is saying, raised the concern about the loosening of involuntary committal criteria increasing the population who will be coming into the emergency room, whom your department will have to deal with.

I put that question to the OMA, asking whether they were concerned, for example, about the hospital restructuring commission's number-crunching exercises based on previous legislation, not these new criteria, and did we need to address the issues of facility-based and institution-based resources. Their response was essentially no, that CTOs are going to put people out the other side and this won't be a problem.

Further, I've been told that there are people currently-form 4 or form 3-who are not admitted because there aren't beds, not because they don't necessarily meet the criteria. Could you comment on that-I hate to put you on the spot-and whether or not you agree with what the OMA had to say on that?

Dr Turner: The OMA reflects the position of the psychiatric profession in a formal way. We reflect the hospitals whose services will be very much involved in implementation of these proposed changes. We've opened up the controversy about whether community treatment orders work and how they work and all that. There is some difference of opinion within the profession. There is also some difference of opinion in the literature. My colleagues in the psychiatric profession have reassured themselves that for the most part, community treatment orders are a positive change. I don't see myself as needing to actually conflict with that position.

Ms Lankin: I'm asking more specifically about the stress on hospital-based resources and the loosening of the criteria. They felt that CTOs would compensate, essentially, for the broadening of the criteria.

Dr Turner: The CTOs, if they're designed to reach a relatively small number of people in this province, probably will not have significant impact on the hospital system. What will have far more impact will be the closure of provincial psychiatric hospital beds. That ties in to a whole other type of program that we're developing called assertive community treatment teams. I don't know how much we need to get into that.

In terms of the form 1s, 3s and 4s, with the opening up of the commitment criteria, there are a significant number of people who don't currently qualify who would qualify. Whether or not those forms will actually be implemented on a given patient, to some extent, will depend on professional discretion. If we think of it, there are in this city probably about 400 to 500 to 600, I don't have an exact count, of people, many of whom are homeless mentally ill, who would probably meet these criteria. If they were to come into the hospital system-I'm just projecting, I'm dealing with a hypothetical-they would either wait in line for the beds or we would have to use professional discretion not to impose form 1s and form 3s on people.

In the profession, we would rather have our role be sufficiently clarified. We would like to know what public policy wants of us, and we would like to then be able to provide what is wanted, what is needed.

The Vice-Chair: Thank you very much for coming here today. I'm sorry, we've run out of time and must move on.

Mrs McLeod: A point of information: If I'm the only committee member that needs to know that, I'd be happy to be given private information and save research some time. We've just heard reference to a number of different schedules and forms-schedule 1, schedule 3, schedule 4-and an indication of the ways in which this legislation and the broadening of criteria would, I think the term was "significantly expand," the number of people who could be considered for admission under one of those forms. I'm wondering if we could get some clarification again so we understand what we're doing here as to what those different forms are and how much broader a population this would be extended to with the criteria in the proposed act.

The Vice-Chair: I have assurance from research that that's quite possible.

Mrs McLeod: It may be too broad, but I think we need to get some sense of-I get concerned when I hear a statement that the criteria expand to a significant number of people, when we're supposedly dealing with a very narrow targeted population. Again, I think that's a dilemma we have to come to grips with as a committee. Whatever information we can get that would help us define appropriately the group we're trying to address would be helpful.

Ms Lankin: I'm perplexed. I can understand it's very easy for legislative research to produce the list of the form 1, it being the form that the physician signs to send you for an assessment, or form 2, the JP, or the form 3, where the psychiatric assessment has taken place and you're actually committed, or the form 4, where it's renewed. We can get those definitions. The impact of the widening of the criteria is in fact the subject of debate. That's why I wish we would have had much more time, because I think you're right that the breadth of that, and that's what we heard from the Canadian Civil Liberties Association as well, is the concern counterpoised against all of the talk we've heard about the CTOs applying to a relatively small number of people. These are very different impacts, and here's the group that could tell us most of that. Perhaps we should ask for unanimous consent to see if we could have Mrs McLeod's question put to the association and see if they could give us some guesstimate on that.

The Vice-Chair: I'm very conscious of the time. We have two more presentations, and we are limited in terms of the time at which we can sit. I think it is something that certainly we need to move on as a committee, as opposed to taking up our deputants' time. I appreciate the interest and I recognize that it's shared by all sides.

Mrs McLeod: I appreciate that, Madam Chair. I think it might be appropriate for legislative research to provide whatever information would be a response to my question which might involve a phone call later on to the people who have just made the presentation, if that's appropriate.

The Vice-Chair: Yes, fine.

Thank you very much for coming here today.

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ONTARIO COUNCIL OF ALTERNATIVE BUSINESSES

The Vice-Chair: I'd like to call on the Ontario Council of Alternative Businesses. Welcome to the committee. For the purposes of Hansard, will you introduce yourself, please.

Ms Diana Capponi: My name is Diana Capponi. I am a psychiatric survivor. I'm also a founding member and the present executive director of the Ontario Council of Alternative Businesses. We receive funding from the Ontario Ministry of Health and Long-Term Care to provide employment opportunities for psychiatric survivors through the development of economic initiatives. Many of you may be familiar with some of our businesses, which include the Raging Spoon restaurant here in Toronto, A-Way Express Couriers, Fresh Start Cleaning and Abel Enterprises in Simcoe. I would like to take this opportunity to introduce you to the staff of the Raging Spoon, who I am honored to have here today supporting me through this whole submission.

The Ontario Council of Alternative Businesses is mandated to address the overwhelmingly high rate of unemployment, recorded at 85%, faced by people who have received a mental health diagnosis.

I will go back to the term "survivor." What does it mean? To many in the mental health sector, this term insults them, so I want to be sure that you folks have a strong understanding of where "survivor" comes from. There are certain outcomes which can just about be guaranteed once an individual has been labeled a schizophrenic or a manic depressive or whatever. These outcomes include isolation, extreme poverty and most often homelessness or horrific housing. In particular for people who end up in provincial psychiatric institutions and who have become institutionalized, these outcomes are a certainty. The term "survivor" does not refer to the illness, or should I say the perceived illness or diagnosis. It has to deal with the outcomes I've already mentioned. The folks that this province deems problematic, the folks on the street, the folks who talk to themselves, have unusual tics and body language are the true survivors of the system. They are examples of the impact of the system. It has nothing to do with the diagnosis.

For your information, you must know that the behaviours I have talked about are the result of medication and are side effects of these drugs. People mistakenly believe that what they are seeing is the mental illness or the schizophrenia. What they are truly seeing are the extremely negative side effects of very powerful medications. Furthermore, for many people, in fact the majority of folks, with the diagnosis I have already talked about, the drugs do not work. In fact, if this province were really concerned about the health of people with mental illness, I question why some of the new anti-psychotic drugs with less harmful side effects are not included with our drug care plan in the province.

I am a member of the Provincial Advisory Committee on Mental Health in Ontario. Over a year ago, this committee reviewed a number of issues related to mental health reform. The committee is made up of stakeholder groups from across the province: service providers, psychiatric survivors, family members and labour. The committee was established to make recommendations and to advise the Ministry of Health on mental health reform in this province. We reviewed the possibility of legislative review and decided to determine, first, why the existing Mental Health Act was not being adhered to and why the public has so little knowledge about it. We voted, and other than one vote from the Schizophrenia Society, all others were in favor of not changing the legislation.

Why then are we here today? The advice of this committee was not taken, and we can only guess why this legislation is coming forward. I am aware that many have come forward to submit to you about the civil rights issues inherent in this legislation. I will leave all that to them and only hope that you have heard them. A society is judged by how they treat the most vulnerable. Keep that in mind. Additionally, I'd like to add that it is common knowledge that the less power individuals have over their own lives, the more likely they will be abused. It is no wonder that women, women with disabilities and children are often victims of abuse and violence. It is no wonder that group home workers are facing prosecution for abusing their powers when locking out a developmentally disabled man from his home, leading to the amputation of his limbs due to exposure. It is no wonder that the last few psychiatrists in the Peterborough area are all incarcerated in jail. It's no wonder that the head of psychiatry at the University of British Columbia has been convicted of rape and sodomy.

Unfortunately, these stories don't make big headlines in the press and they're not as good as "Schizophrenic Pushes Someone in Front of Subway." This sells more papers. The general public is very misinformed, and unfortunately so is Mr Patten, who originally buckled under the pressure of the Schizophrenia Society and CAVEAT. One always wants to respond to terrible stories of victimization in a quick way or in a way that will ensure it never happens again. The proposed changes to the Mental Health Act and Consent to Treatment Act will not end these stories.

Much of the good news lately in either the print or electronic media has come from our businesses. Our organization is entirely run by psychiatric survivors. We are all people who carry the label schizophrenia, manic-depressive, depressive, schizoid affective disorder, obsessive-compulsive disorder-the list goes on. We are not pushing people in front of subways. We are not killing anybody. We are running, managing and directing businesses. Many within the Schizophrenia Society-I'll call them SS-would have you believe that we are not the folks that are talked about in this legislation. I'd like to confront that right here. All of us who are here today have been formed or put into hospital against our will. We have experienced forced treatment. We have been in jail and we have lived on the streets. Now we have, through our own efforts, rebuilt our lives. We feel productive. We control our own decisions, largely because work became available. We were no longer treated like children. Other survivors had faith in us. We pay taxes. We feel productive.

Being a burden on society does not do anyone's mental health any good. One thing that happens when you are surrounded by well-intentioned workers within the system is that decisions are constantly made for you. You are taught not to accept or trust your own judgment. You are told when to get up, where to live, what drugs to take, how much money you get. Everyone who speaks with you is paid to do so. No one expects anything from you but violence or weird behavior. Any behaviour becomes pathologized. You are too happy, you are too sad, you are too angry, and that goes on. This is bound to happen within a paternalistic system which feels they have our best interests at heart. Those two words, "best interests," scare us the most. Class, culture and race have a lot to do with perceived best interests.

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Our organization today represents approximately 800 people who are now working and running their businesses. They are providing goods and services to their geographic community. They are proud of their businesses, they are productive and they are less dependent on disability pensions. These are all people who were previously deemed permanently unemployable. We got fed up with systems that left us out-employment programs, therapeutic programs-because we were deemed not to benefit from any of them. We have turned all that around and have proven concretely what people with a mental illness or a diagnosis can do. Discrimination and ignorance are far too rampant, and I would hope that members of this committee will educate themselves on who we are and not be prey to the sensationalizing of some bad stories by a small percentage of people in our community. These stories are few and far between. That is why we look the way we do today; we are healthy because we are productive. Had you seen me coming out of Queen Street Mental Health Centre 17 years ago, you would not believe where I am today. I find it hard to believe myself.

The largest barrier to people maintaining their health and being productive is the discrimination we face due to the sensationalism of our perceived illness. People are afraid of us. Why? Because of media, and because of an industry that makes us become undesirable.

I went from Queen Street to the infamous Shannon Court, a privately operated rooming and boarding house, housing minimally 70 people, many of whom were severely ill. Jail would have been better. No amount of medication or ACT teams would have helped my mental health while I lived in a home meant for undesirables, where I suffered with lice and scabies while taking antipsychotic drugs and eating a diet consisting largely of Kraft dinner. I looked funny, I smelled bad, I acted badly due to medications, and I had no money. I was asked to leave places because of how I looked. As much as the SS will tell you this doesn't affect us, it does.

We have improved our health. We have amazing success stories. We have had much publicity of what we're doing. Don't dismiss our opinion because we now appear healthy. Don't buy the "it won't apply to you" story. CTOs should not apply to anyone. You have heard from the Ontario division of the Canadian Mental Health Association, you have heard from a number of organizations dedicated to improving the lives of psychiatric survivors, who are, in the majority, opposed to these changes. These changes could apply to all of us.

Today, gladly, I discovered that similar legislation in Connecticut was defeated just yesterday. Recently the province of New Brunswick also defeated it.

The changes to the existing legislation, the Substitute Decisions Act, include an avenue to change the prescribed wish of a person in care, wishes made while competent. With this new law those changes can be appealed, those wishes can be changed.

Mr Patten said that he didn't like the term "community treatment order"; it sounded punitive. I think language like "increasing consequences" sounds very punitive should anyone not be in compliance with their treatment. That's very scary indeed to all of us as survivors.

All people in the province of Ontario should be afraid of these changes. Think about your mothers and fathers, think about people with HIV, think about other people with life-threatening illness. This legislation can affect all of us.

I would like to focus on the message this committee, even the talk of legislative changes, has given to the public at large. It has reconfirmed that mentally ill people are not to be trusted, that we are violent, that we are dangerous and we can't be trusted to know what's good for us. All of the hard work of the council, of the Raging Spoon employees here today and all the other businesses trying to improve quality of life for our community, trying to educate the public, has basically been nullified by this stuff. It makes our work so much harder.

We spend so much time and effort spreading the message that psychiatric survivors do have skills and abilities; we are able to be productive citizens; we are able to work; that the most common determinant of violence is drugs and alcohol, not a mental health label. This is proven, and I hope there has been some research study into this. All the work that we have been doing is nullified by the press releases of these kinds of committee hearings. The public sees it and assumes that we should be put away. We are angered by this. We, with very little support, have struggled to have a little bit more economic advantage, to have a little more self-esteem. We market our businesses as survivor businesses. We fight consistently with traditional agencies and others who think we cannot produce. Now we feel we've stepped back 50 years.

We recently produced a one-hour documentary entitled Working Like Crazy which had a national airing. The Ministry of Health funded it because it would educate the public so that survivors would not be discriminated against. The news of this legislative change has blown any effects that the documentary may have had. The government should be ashamed. You should hang your heads in shame.

The existing act covers public safety issues. Most of us who have been formed, whenever we say we want a review while on involuntary status, miraculously become voluntary patients. Don't trust the psychiatric profession.

We need to improve services, we need improvements in medications and more importantly we need to continue to support organizations like ourselves who actually impact a person's quality of life.

And mostly, stop sending out horror stories about us. We are no more likely to be violent than other segments of the society. Do you force drunk drivers to take medication ensuring they won't drink and drive again? No, because you wouldn't get away with it. Do you force people who have abused their spouses into treatment? No, because you wouldn't get away with it.

Ignorance and discrimination should not be utilized to score political points. That is what we feel this government is doing. All the experts, especially us, will largely agree that this legislation will not only have little impact on the issues you are concerned about, but will cost money and be impossible, frankly, to enforce.

Hospital beds do not exist. Where will you put people? Are all our services going to be CTO police? Where are the appeal mechanisms? Are we going to end up in jails? Lately, it seems, in talking about survivors, there's always a relationship to the criminal justice system. Is that a plan? Is that more discrimination?

Look at us and look at the Raging Spoon employees. Don't buy the SS stories that it's not us. It is us. There are many other family organizations that do not support this bill. However, the SS is well-connected and very powerful lobbyists. Let's spend our time and energy and money to address the issues that each horror story raises. The issue is not the lack of legislation; it's the lack of appropriate care and treatment. No one chooses to be ill; no one wants to be ill. If help is effective and decent and available, people take advantage of it.

Don't use our community to trick the public into believing all is well now. This most certainly will backfire on you.

The Vice-Chair: Thank you very much. We really do not have time for questions; you've used most of the time available. But we certainly appreciate your coming forward today with the information you've given us.

Ms Lankin: Madam Chair, just a couple of requests then: first, of legislative research. Ms Capponi made reference to the documentary that was recently aired on TVO. I'm wondering if we might attempt to obtain a copy of that. Perhaps in consultation with the clerk you might determine whether there is a time on the committee's agenda when we might view this. If that time is being taken up by presenters, perhaps there is an opportunity where, following the recess of the committee, those of us who are interested may stay and watch it collectively at some point. I would prefer if it could be on the record because I would actually like to see the transcript of Hansard have the transcript of the documentary.

Second, a request to the ministry: It's been raised a number of times that some of the newest psychotropic drugs and drugs for treatment of serious mental illness with the least severe adverse effects are not covered under the Ontario drug benefit program and the formulary. I would like the ministry to provide a response to the committee as to why that is the case and what the plans are for the listing of those particular drugs.

Lastly, I would suggest a recommendation to committee members. I've had the opportunity to have some experience with the Ontario Council of Alternative Businesses that Ms Capponi represents and some of the individual businesses like Fresh Start, which is under contract with my constituency office, and A-Way Express which is directly across from my constituency office.

I would really encourage, if committee members have not visited and toured an alternative business, having the council set that opportunity up for you because it's a very enlightening experience and it is one of the options, irrespective of what we do in legislation, and we should support the ministry in its continued and expanded support of it.

The Vice-Chair: Thank you very much and thank you, Ms Capponi, for coming.

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CANADIAN MENTAL HEALTH ASSOCIATION, METRO TORONTO BRANCH

The Vice-Chair: Our last presenter is the Canadian Mental Health Association, Metro Toronto Branch, Steve Lurie.

Mr Steve Lurie: I'd like to turn the floor over to my president, Eileen Dawe. She will start first; I'll follow.

Ms Eileen Dawe: My name is Eileen Dawe and I am the president of the board of directors of the Canadian Mental Health Association, Metro Toronto branch. Last year we provided community support and housing services to 461 people with serious mental illness: 60% have schizophrenia and 31% have mood disorders like myself. Most of the people we serve would meet the previous hospitalization criteria in your bill.

I am a volunteer who has been involved with CMHA for over eight years and am also a consumer of mental health services. I have battled depression for over 30 years. I've been homeless, jobless, suicidal and unable to function. This bill would not have helped me. What has helped me are three things: a good psychiatrist and social worker from my local hospital in Scarborough; housing and community supports provided by CMHA; meaningful daily activity, which for me is my volunteer work with CMHA.

I lost my job, my apartment, my trailer, all my material belongings, all that I had, because of my illness. I had to go and stay at my sister's, away from Toronto and away from my support system, sleeping on her couch, living out of a suitcase. I had no self-esteem. I was very resentful. I was thinking of death continually and I had problems with my medication.

Through my psychiatrist and social worker at the hospital, I got connected to CMHA and they helped me find subsidized housing and provided a community worker for support. When I got the apartment, this was something I never thought I would have again. Housing is so very important to us.

I still have bouts of recurring depression. In fact today, before coming here, I visited my therapist because right now I'm in a bout of my depression. Coming here is very hard. She told me to just take deep breaths and remember why I'm going there. I think it's important. There are times when I can't leave my apartment, or it takes me 45 minutes to maybe an hour to decide what I should take out of the freezer to have for supper. My support system helps me get through these times. They are there for me. That's what is important.

The other thing that helps is my involvement with CMHA. Everyone has a basic need to feel that they can contribute and that their lives have some meaning. For so many years this feeling was gone for me and the darkness that surrounded me was swallowing me up into the depths of hell. With the continual support from this triad support system, I am beginning to realize that having an illness, any type of illness, does not mean your life is meaningless.

I must admit that my life is not the easiest. Each morning I awake with a certain amount of dread. Each day is a fight for me. I have choices to help me to survive, and I do choose to survive. It means taking my medication, realizing that I do have choices, and the result is that even though I still suffer from depression, I am able to cope, use the knowledge I've gained, and use the supports that have become a stronghold for me when I get ill.

Having resources available to you and being able to choose how you use them is a major part of recovery and empowerment. This bill is coercive and not empowering. To think that I could be arrested for up to 30 days after I told my psychiatrist I no longer need a CTO.

This bill does nothing to provide the 3,800 additional units of supportive housing that are still needed in Toronto. It makes no progress putting more resources into community mental health services.

The right thing to do would be to withdraw this bill and bring in community mental health systems legislation which would ensure at least $351 million of additional funding for community supports and housing.

I want everybody to know I am my own best caregiver. It is my responsibility. I do not want to be thought of as some victim, some voiceless person who needs others to speak for me, care for me or think for me.

To do this, though, I need the means to do such, not as how some people think of people with a disability, but as a citizen of this country and this province. It is not handouts we are asking for, but a reaching out from all sources to help us be the people we were, the people we are and the people we are going to be. So much is up to you. So this I ask you: Withdraw the bill and do the right things. We are all in this game of life together. Thank you.

I'd now like to turn it over to our executive director, Steve Lurie, to provide some additional comments on the bill.

Mr Lurie: Thanks, Eileen. That's going to be a tough act for me to follow. I would remind this committee that about every 10 or 15 years we debate what to do with the mental health system, and so far haven't done the right thing. You can think back to the debates on Bill 190 in 1987 when David Reville brought forward, with some of our urging, draft community mental health legislation. All three parties thought it was a great idea. We're still waiting.

This bill, Bill 68, sets a different standard that we've not had before. It flies in the face of last year's Supreme Court Winko decision that says that for somebody who's not criminally responsible, unless there's an absolute and significant risk of serious criminal offences occurring, you must grant an absolute discharge.

We're saying that on the criminal law side-that's the Supreme Court saying, not Steve Lurie saying-people, unless you can prove a serious criminal offence is likely to occur, should be free from any coercion based on their mental disability. This act moves in the wrong direction. It increases the stigma against the mentally ill as well. This is particularly important because we've ignored the advice of experts.

Marnie Rice and Grant Harris wrote a marvelous article which I've included in the package for the clerk that says: "Mental disorder and psychiatric disturbance are poor predictors of violence. Actuarial methods are more accurate in predicting risk than unaided clinical judgment." In other words, to pick up on Diana's point, you can't trust the clinicians on this one. Clinical judgment is a poor index. "Our research has shown that a diagnosis of schizophrenia is associated with a lower risk of violence."

You might ask: Why do we have this legislation before us? We should be putting in place more supportive housing. We should have been increasing the community-based mental health services that began with Mr Grossman's initiative in 1982, Mrs Caplan's initiatives in 1987 and Ms Lankin's initiatives in the early 1990s in mental health reform, but we're still not there. We're seven years into the mental health reform declared by the previous government and we have not even come close to meeting the spending targets. At least an additional $351 million needs to be put on the table. It was an embarrassment that this was a health care budget and there was no money announced for mental health reform.

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The current legislation should be withdrawn and replaced by mental health systems legislation. As Diana mentioned in her remarks, the provincial advisory committee of which I am a member was consulted on the need for provincial legislation to build a mental health system and we were beginning to undertake that task. Now we have a much narrower and flawed approach to legislation.

We participated in the consultations about the proposed legislation. The overwhelming opinion in every consultation across the province was that the legislation was unnecessary and that the focus of activity should be on putting community mental health services in place.

This is further supported by a recent release of the World Health Organization study, which came out just weeks ago, on mental illness in seven countries, including Canada. It showed that 37.5% of the Canadian sample experienced at least one mental disorder, but only 21.8% had received any mental health services in the previous 12 months. We should be focusing on that. How do we ensure that all Ontarians have timely access to a full range of mental health services? That's what the bill should be about, not what we're talking about.

At the same time, CMHA and others are recognizing that the government has a majority. Unless this committee as a group is prepared to stand up and say, "Get back to square one," the bill will pass in some form. In that spirit, I've tried to bring forward some suggestions to make what I think is a badly drafted piece of legislation more workable.

(1) The Saskatchewan criteria for CTOs should be used rather than the current broad provisions, and in particular, I'm offended that the OMA's brief suggests broadening CTOs for everybody.

(2) The requirement for individual service providers to sign the orders will render the legislation unworkable, especially as an alternative to hospitalization.

It's 6 o'clock in the evening. Think about it. Somebody shows up, a psychiatrist has to inform them of their rights advice, consult with other service providers, arrange housing, arrange medication, get service providers to agree because their signatures are on the order and they're liable for a failure to bring the order through. This will just not work. What if the worker won't sign? What if the worker goes on vacation? What if they get sick during the term of the order? Would a whole ACT team need to sign an order by a team psychiatrist, or only an order from outside psychiatrist?

The process could be simplified using procedures that work for the support and provision of non-criminally responsible patients by provincial psychiatric hospitals. This approach would allow a psychiatrist to approve the provision of service by a service provider in the same way that a provincial psychiatric hospital administrator can approve where an NCR patient lives in the community and can assign supervision to approved persons. In this context, this should be based on point three.

(3) With the consent of the client and the service provider, the psychiatrist could approve case management services, attendance at clubhouse programs, living arrangements or other community programs. There could and probably should be an agreement between the service provider and the psychiatrist to notify the psychiatrist in the event of the deterioration of the client to the point where an examination would be warranted under the Mental Health Act.

Not only does that make sense, it's based on the duty-to-warn principle anyway. It would provide for an ability to say, "We think something is happening here, we think there may be some risk, we'd like to have the client examined," but not hauled in by the police, as this act provides for.

(4) The act should specify that CTOs can only be implemented by designated hospitals and psychiatrists. This would allow it to start slowly. It would allow for some control over who issues them and make monitoring easier. The thought that every physician in the province could issue a CTO is very, very scary, when the experience in most jurisdictions is that CTOs are rarely used to avoid hospitalization, they are more frequently used to shorten hospital stay.

(5) Most important, if you do proceed to go forward with this legislation, it must ensure that independent rights advice and advocacy is available to anyone who would be subject to a CTO. This will require a provincial strategy and increased funding to expand the operations of the provincial psychiatric advocate's office to provide rights advice and advocacy in both institutional and community settings. Right now the PPAO can only provide advice in institutional settings and its whole future is limited by the divestment of the psychiatric hospitals.

(6) Most important-and this point was made by the Association of General Hospital Psychiatric Services-proclamation should not occur until the rights advice, advocacy and CTO administration regimes are in place, along with the full range of community mental health and housing support services across the province. The ministry regional offices should have to signify that a sufficient supply of services exists and that housing is in place in each region before CTOs can be issued.

(7) Probably most important, the legislation should be subject to a sunset clause, with continuation based on the results of evaluation showing that it has met its public policy objectives.

As a final point, our CMHA, Ontario division, presented you with 70 amendments. We ask you to consider our suggestions and theirs very seriously, but I must tell you honestly, I'm not sure you can make a silk purse out of a sow's ear.

The Chair: That leaves us about two and a half or three minutes. I think in the interests of logic, the NDP was next up in the rotation, so Ms Lankin, I'll afford you the opportunity to use those three minutes.

Ms Lankin: I appreciate both of your presentations today, and I want to say particularly that I know it must be difficult and that sometimes the settings are intimidating. I hope you will know that it's very important to us as well that you took the time to come.

I also wanted to speak directly with Mr Lurie. You've made reference to mental health reform. Not all committee members may know your long history with respect to this issue. A lot of people have come before us and said that if the resources were there in the community, these sorts of things would be unnecessary. Others have made references to things like the document that was produced by our government in 1993, Putting People First, and you had much to do with the preparation of that. Could you give us your opinion about what elements of mental health reform have not been proceeded with that would preclude the need for this legislation?

Let me just put a particular twist on that question. Accepting everything that has been said around the civil liberties issue and human rights issue, there are still some people who have presented before us who have told us very tragic stories about their families. We've heard many tragic stories about many people who have been victims of the system as well. They have told us tragic stories about their families and how they truly believe that while there should be more community supports, that wouldn't have helped their family members and that they needed some measures like this to intervene. Could you address community health reform, how you see it preventing the need for such legislation and whether or not you can address the concerns these family members have raised?

Mr Lurie: I guess the fundamental issue is the money required to shift the spending from an institutional basis to a community basis, a minimum of $400 million. Actually, in a report done for the previous administration to yours, the funding strategy group identified a need for $600 million in new dollars to deal with the shortfall in funding for services for the seriously mentally ill in the community. So on the one hand you need services like the kind of things Diana Capponi mentioned: consumer supports, other employment programs, housing, more case management.

For example, the recent ACTT initiative of the Ministry of Health, which is to be commended, didn't deal with the fact that for most housing programs, for most case management programs, there are huge waiting lists of years, not just months. We have 70 people on our supportive housing waiting list, but because they're not homeless, they don't qualify for any of the new units that are being brought on stream in Toronto. So clearly across the province we need to do a whole lot more to put in place that full range of community supports: more outpatient programs, more clubhouses, more case management, more employment programs, more housing.

To deal with the issue of whether a CTO would prevent some of the tragedies, I guess I have to say that tragedies are going to occur. The problem is that the profession and all of us who work in the mental health field have to acknowledge that we're not very good at predicting violent acts. We're also not very good at intervening appropriately. But if you have more options for people and if you build more supports around people, other jurisdictions have found that these things work.

The problem we face is that you need to have a range of services that people will choose to come to. The literature on serving the homeless population, which is one of the more difficult populations to serve, has demonstrated that you really need a variety of services and housing forms that we haven't even begun to think about yet here in this country. There have been some very interesting initiatives south of the border. I would argue that if you provide more choice for people about a range of supports and actually make those supports visible and available, you're less likely to have to rely on coercion.

Also I think that includes the kind of thing I talked about where you would encourage agreements and arrangements between people and services and make it easy for people to be examined if there was risk. These days, if there's risk, you don't have many doctors who will move around and come to see a person, so you have to get the person to a hospital. That's still a problem in the current bill. So we need to think of many more creative ways where physicians and other professionals could be trained to provide support.

I also think back to 20 years ago when I started working here in Toronto. Friends and advocates had a crisis program which was peer support, where consumers went to other people's homes and supported them through crisis. I think we need to expand those services far more than we have. Many of the groups, like CMHA and the Ontario Federation of Community Mental Health and Addictions Programs, who will be speaking to you I guess at the end of the month, have always said if you put the services in place, this will work. If you build it, they will come, but we haven't built it yet.

The Chair: Thank you both very much for coming before us here today. Ms Dawe, you did an excellent job. No reason to be worried at all.

That concludes our hearings in Toronto today. Just to put on the record-the committee members have already been notified-unfortunately we only had four expressions of interest in Thunder Bay and I think it makes no sense to have 10 people traveling the province at great expense to the taxpayers. The clerk will be inviting those people, including the CMHA, Sudbury division, to send in written briefs and they will certainly be circulated to all the members.

I should say to our friends from CMHA who are here today that you might want to indicate that because the Ottawa branch is making presentations, if the Sudbury branch has any different views they would like to put on the record, we'd certainly look forward to hearing them in Ottawa, because we do want to hear people's views. If they aren't comfortable with written briefs, we would make available video conferencing in room 151 during one of our subsequent hearing days. But I think we can leave that in abeyance until the clerk hears the responses from the other three groups.

Ms Lankin: I have a query with respect to the remaining Toronto hearings and whether or not there is still time and space available there. One of the things I was thinking was, if we receive written submissions and we don't take time for video conferencing and if we get additional Toronto requests, we may need to have a subcommittee meeting to look at scheduling another Toronto day at some point and getting permission from the House. That's all I was going to flag, Mr Chair.

The Chair: Thank you for those comments. Since we won't see everyone on Tuesday, the committee stands adjourned until Wednesday, tentatively at 11 o'clock, in Ottawa.

The committee adjourned at 1814.